Welcome to GSD & Me
The content of this website is intended for UK patients. Information concerning liver Glycogen Storage Disease management is based upon UK practice. As dietary management may vary in different countries, please speak to your metabolic team at the hospital for individualised advice for your GSD.
Hearing from others who live with Glycogen Storage Disease can be a helpful part of understanding the condition.
On this page, you'll find videos of people and families sharing their experiences with liver GSD. Everyone’s story is different, but you may find things that feel familiar, or learn something new.
These stories are here to support, inform, and remind you that you’re not alone.
James
Yasmin
“ A wonderful insight into the life of a parent and mother living with a daugher with GSD type III”
Anosha
“A warm and inspiring story of a young person living with GSD type III”
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