Welcome to GSD & Me
The content of this website is intended for UK patients. Information concerning liver Glycogen Storage Disease management is based upon UK practice. As dietary management may vary in different countries, please speak to your metabolic team at the hospital for individualised advice for your GSD.
Hearing from others who live with Glycogen Storage Disease can be a helpful part of understanding the condition.
On this page, you'll find videos of people and families sharing their experiences with liver GSD. Everyone’s story is different, but you may find things that feel familiar, or learn something new.
These stories are here to support, inform, and remind you that you’re not alone.
James
Anosha
This video is a warm and inspiring story about a young person living with GSD type III. In the video Anosha explains how the condition has affected her and how she has coped with the condition throughout her young life. She also discusses her inspiring and positive future thoughts and plans.
Yasmin
This video gives a wonderful and inspiring insight into the life of Yasmin, a mother of a young person living with GSD type III. In the video Yasmin explains how the family’s life was affected before and after their firstborn was diagnosed with the rare condition, and how this affected their everyday life. She also discusses the challenges she and the entire family faced in the community caring for their daughter.
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