Exploring new places on a holiday or short break can be done with a liver GSD. To make the most of your time away, it is a good idea to plan your holidays.
It is especially important to know what to do and where to go if you become ill when you are away.
Here are some things to bear in mind at different stages:
Ideally discuss your holiday plans with your Specialist Metabolic Team (SMT).
You will find that some destinations might be more suitable than others. Sometimes, a trip to a particular location might simply need extra planning.
If you are travelling overseas, you should obtain a letter from your SMT confirming your name, date of birth and diagnosis.
This should explain the need for any special dietary and/or medical supplies you carry, including your starch.
You might find yourself having to explain your condition to somebody who has never heard of it before. They may not even speak the same language.
It can be helpful to packing a folder which contains all the relevant information on GSD such as:
Take a look at our printable travel checklist. Remember you may not always have internet access!
You should split your essential supplies between hand and hold luggage. This gives you extra peace of mind if your hold luggage goes missing.
Sometimes it can take time to obtain feed or equipment supplies. So it is best to order adequate supplies well in advance of going away.
Your SMT can help with this. The more notice you give them, the better.
Book your travel insurance in good time, ideally when you book your holiday.
If you are unfortunate enough to become unwell on holiday, appropriate insurance should help cover you for any expenses.