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Welcome to GSD & Me

The content of this website is intended for UK patients. Information concerning liver Glycogen Storage Disease management is based upon UK practice. As dietary management may vary in different countries, please speak to your metabolic team at the hospital for individualised advice for your GSD.

Privacy Policy

This privacy notice applies to information Vitaflo receives about members of the public who have submitted their information via GSD and Me website.

Using personal information

We will only use the information supplied to us with your consent or in line with Vitaflo’s legitimate interests. You may withdraw your consent at any time.

Your information will be processed by Vitaflo so that we can:

  • Contact you to ask for your support and further information about your story
  • Keep a record of your relationship with us

Retention of personal information

Personal information stored by Vitaflo will be kept under review and only kept if still required for any of the above purposes. We will not disclose your personal information to any third parties without your prior consent and will store your details in strictest confidence.  

Your rights

You may request to access information held about you at any time.  Please contact us at if you would like to access the information that we hold or have any questions about this privacy notice.