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Welcome to GSD & Me

The content of this website is intended for UK patients. Information concerning liver Glycogen Storage Disease management is based upon UK practice. As dietary management may vary in different countries, please speak to your metabolic team at the hospital for individualised advice for your GSD.

My GSD Adventure

Do you have GSD? Do you have a child, brother, sister or other relation with GSD? Perhaps you are a friend to somebody with GSD or you have come across GSD through your job (e.g. teaching) or sporting/social activities (e.g. Girl guides, Scouts, etc)? If you can answer ‘yes’ to any of these questions, we would love to hear your stories! With GSD being so rare, it can be easy for those touched by it to feel isolated but through sharing experiences we can learn from and be inspired by others.

If you would like to submit your story please read the privacy policy below and click the box to accept. You should then use the button below to open an email and send your story to us.

Privacy policy for your information and approval click here.