Do you have GSD? Do you have a child, brother, sister or other relation with GSD? Perhaps you are a friend to somebody with GSD or you have come across GSD through your job (e.g. teaching) or sporting/social activities (e.g. Girl guides, Scouts, etc)? If you can answer ‘yes’ to any of these questions, we would love to hear your stories! With GSD being so rare, it can be easy for those touched by it to feel isolated but through sharing experiences we can learn from and be inspired by others.