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Welcome to GSD & Me

The content of this website is intended for UK patients. Information concerning liver Glycogen Storage Disease management is based upon UK practice. As dietary management may vary in different countries, please speak to your metabolic team at the hospital for individualised advice for your GSD.

Already using Glycosade?

Glycosade is a food for special medical purpose for the dietary management of liver glycogen storage disease (GSD) from 2 years of age. Glycosade must only be started after assessment by your Specialist Metabolic Team including your Doctor, Dietitian and Nurse, and should only be used under medical supervision.

The guidance on using Glycosade is broadly similar to that offered for regular cornstarch. Glycosade must not be heated or left standing in solution. If you are already using Glycosade and would like to try a different way of taking it, click here for mixing ideas.

If you have not tried Glycosade before and would like to know more, please speak to the Specialist Metabolic Team.